I appreciate and agree with your point about medical monopolism, and in general around the principle of medical self-determination. So, let me frame this another way:
If you're trained and knowledgeable enough that you're legitimately on-par with, and equivalently equipped to, a professional working in the field, but the thing you're doing is something that would be dangerous for someone less knowledgeable/equipped than you, there is a risk in publicly describing the activity as DIY.
We do regularly get people with negligible background in biomedicine and none of the requisite equipment rolling in and asking for advice on doing advanced cell-culture medical procedures, or help with making a bioluminescent tattoo, or what have you.
Years back there was an effort to help draw a chalk-line around what we as a community will consider "DIYbio" so that the hobby does not earn a bad reputation (even the entirely safe and predictable stuff gets tiresomely bad press from time to time). Medical procedures fall well outside that, IMHO.
Or, TL;DR: If you're going to help democratise medicine in a safe and responsible way after undertaking years of medical study, that's cool, but calling it DIY draws undue scrutiny on DIYbio.
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Dec 9, 2020, 09:17 by fgarcia0007@gmail.com:
Thank you for your concern. I agree in principle. However, if you believe in safety and prudent behavior, that begins with being informed. You do not know what procedure I'm talking about and didn't ask me to elaborate before opining.I have more than layman's knowledge about the subject - I have an MD though I am not a licensed physician. I have been a private patient advocate for years. I would be doing this only after achieving a thorough understanding of the procedure, the science around it, and safety protocol. I intend to follow an existing proven method that is well documented and to practice a few times before doing the real thing.No one, including doctors, has a monopoly on medical knowledge and its applications. We have to get used to today's reality in which patients sometimes know more about a medical topic than their doctor, patients order their own tests directly form labs, and are increasingly acquiring access to medical treatments and equipment directly.On Wednesday, December 9, 2020 at 3:56:23 AM UTC-5 Cathal Garvey wrote:I know the USA is a dystopia of failed healthcare even at the best of times, and I'm sorry to hear you have a condition that motivates a risk like this. But, the obligatory response here is that DIYbio is not the right umbrella for highly risky self-experimentation with cell or genetic engineering technologies.It is likely that unless you are a professional in the field, you are unaware of most of the risks involved. But the risks remain.And, if you'll forgive me for being a bit flippant, something being legal does not mean it's a good idea. If you do it on a private road, it's perfectly legal to wire up a remote control truck and drive it over yourself.--Sent with Tutanota, the secure & ad-free mailbox:9 Dec 2020, 08:45 by fgarc...@gmail.com:Hello everyone. As you may know the last 10 years has brought us numerous almost miraculous therapies using adipose derived stem cells ADSC. The stem cells that exist in your subcutaneous fat can be transplanted to other parts of the body for a wide range of therapeutic purposes. There are almost no side effects or possibility of harm because no drugs are used. basically you're just moving your own cells from one place to another.in the US the use of stem cells is regulated by the FDA only if the cells are modified to such an extent that they then are considered a drug. using stem cells without modification is not regulated by the FDA and perfectly legal. among the pathologies being treated with ADSCs, a small number can only ore best be treated with ADSCs. I suffer from one of those for which I have tried the standard treatment unsuccessfully. the time and cost to find a practitioner to use my stem cells to treat this condition are not reasonable .I did a decent amount of reading and discovered methods used to extract and isolate a viable adipose stem cells for reinjection into the body that are surprisingly straightforward and doable without needing prohibitively expensive equipment . I have enough background in life sciences and do-it-yourself biohacking that I feel I can safely and effectively use one of these methods successfully on myself.I would love to have someone join me because doing this is easier with two people and it also would be more fun. So if you are interested in gaining an extremely useful skill and would participate with me or assist me in doing this please let me know . I live in New York City
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