On Friday, July 12, 2013 5:19:04 PM UTC-4, Nathan McCorkle wrote:
On Fri, Jul 12, 2013 at 2:04 PM, Jason Bobe <jaso...@gmail.com> wrote:
> It seems strange to me that most research studies today simply refuse to
> make raw data available to the human subjects who enroll in those studies.
> Sometimes researchers attempt to purposefully design "memory holes" and
> other obfuscation, so it is difficult to figure out which data belongs to
> which volunteer, etc.
Isn't that (at least some of that) built-in to ensure the
double-blindedness of the study?
no, blindness need not apply and it is does not apply to this observational study. Double-blindness is applied in some clinical trials, especially for therapies.
> So, mvp plans to return data to participants right? Wrong. As their FAQ
> states: "It will not be possible to give participants results of the blood
> tests"
But that doesn't /seem/ to be a choice they've made. Here's the rest
of the FAQ answer:
"Due to regulations under the Clinical Laboratory Improvement
Ammendments (CLIA), we are legally unable to return research results
to participants. Results from the blood tests will not be placed in
participants' electronic health record. Participants should discuss
any health concerns with their doctor or other health care provider,
who can arrange any necessary and appropriate tests."
There are many excuses that researchers will be put forth as to why they are unable or unwilling . CLIA is one.
Jason
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