Re: [DIYbio] White House Petition to Reverse FDA decision to bar 23&Me from selling their DNA kits

On Thu, Nov 28, 2013 at 9:46 PM, Srihari Yamanoor <yamanoor@gmail.com> wrote:
> Cathal, great answer, and I believe your most important point is this:
>
> If it's merely an issue of sketchy medical diagnosis and not of
> self-knowledge, I'm on board for regulation provided it doesn't prevent
> you from getting your sequence data and interpreting it for yourself.
>
> This is the delicate issue - the balance of patient rights vs. commercial
> profit making, both of which are needed. This is not the first time the FDA
> has had to deal with this emotionally titillating issue. Cancer patients and
> their loved ones have never been able to reconcile with the stance of
> experimental drug administration on patients with no other available
> treatments (and the ethical/business issues there can be the subject of tons
> of PhDs).

What's the point of doing that to dying patients though? Big pharma
not wanting to have cures found, so they can continue providing damage
control? 'Moral' and 'ethical' people with some religious view of
suicide?

What good, logical, argument can be made to deny people the right to
knowingly and willfully put something into their body that won't cause
social harm? If someone was dying, and an experiment killed them
first, wouldn't the proper reaction be to respect them /more/ for
giving the rest of humanity a data point?

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