[DIYbio] Re: Human Gene Editing - Considerations

Regulation of medical therapies has NEVER produced a positive result, and ALWAYS produces a chilling effect on the science.  Some basic standards can be helpful, but as mentioned our tort system is so overbearing already that additional regulation simply can't have any positive effect.

I don't understand how scientists keep going along with regulations that always produce negative results and have never produced anything positive.  You ought to consider it your duty to point this out in no uncertain terms.

You have to consider what the end result of regulation is... you are forcibly robbing people of something they believe is appropriate and valuable to their health.  That's not hyperbole either.  The end result is cops kicking your door in and robbing you of your medicine at gunpoint.  People tend to forget that when they're on their soapbox talking about helping protect people from themselves.
 

On Thursday, April 28, 2016 at 8:01:19 AM UTC-7, Philipp Boeing wrote:
Hi everyone, 

We have been asked to talk about human gene editing (in particular triggered by CRISPR) in front of a science and ethics committee. Ideally we'd like to include some responses from the community, in particular we are interested in social perspectives by different stakeholders in the DIYbio community, so:
- what is your perspective and vision for ethical, legal, social issues and openness of human gene editing
- what kind of potential futures do you imagine for human gene editing and DIYbio?
- how do you think human gene editing should be used? 
- should there be restrictions, and what should they be?
- do you consider human gene editing a right and or a risk? 

Please feel free to brainstorm!

Many thanks,

Philipp

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